Minutes from AGM 22nd May 2023.

Present: Mark Mayer, Sarah Sugden, Nicki Turley, John Butt, Van​essa Butt, ​Karen Hinks.
Apologie​​s​:​ Monique Lauder

1 Opening of the meeting
2 Presenting the previous AGM minutes
3 Chairman’s report
4 Treasurer’s report 
5 Secretary’s repor
6 Minutes from Meeting

Dear Members

listed above are links to the reports and minutes from the AGM meeting held on Google Meet as well as link to the full meeting presented online via facebook live. I apologise for the echo in some of the video, no one watching told me this was happening. Here are some highlights of what happened in the meeting.

John, Vanessa and Monique have stood down as trustees of the group, we wished them all the best in the future and all the hard work they have put into making the group what it is today. A collection has been started towards a leaving gift for them, anyone interested in donation to contact us. 

Nicki has put her name forward for the role of Treasure, Sarah has put her name forward for the roll of Secretary, if there are no objections this will be carried. I will remain as your chairperson. We are looking for new members  to join the community and Trustees, as meetings will mainly going to be online it will make it easier for you to attend, I don’t want anyone to feel they can not take on the responsibility, we will guide you through the process,   

The Yearly AGMs will be held online when possible, if this is agreed by members it will give you all the opportunity to interact with the board of trustees and give feedback on what we do next. I know many of you struggle to get to the family days when we normally hold the AGMs 

Our financial situation is strong and we are looking at ways to spend this money on helping you all. A full copy of the report can be found here. Financial Report.

Family day will be held on  July 16th For the family day which will be held at Thames Valley Adventure Playground –  Bath Rd, Taplow, Maidenhead SL6 0PR. you can register your attendance here https://wdssg.org/wds-family-day-acceptance-form/  look forward to seeing you if you can make it.

AOB if you could give feedback and accept these minutes by clicking on this link provided feedback form this will be most helpful. If we do not hear back from you we will also accept this to be there is no objections to the changes made within the committee.

Kind Regards,
Mark Mayer,


Having a Family Trust

At the last Family Day I did a short presentation on our experience with setting up a family trust and why.

The main thing I learnt during the discussions that followed was that several members said that they had a “Disabled Persons Trust” and I had not heard of this type. This goes to prove that it is advisable to get professional help if you go down this path.
From a little research I did I think you will find that the “Disabled Persons Trust” is also  known as the ‘trusts for vulnerable beneficiaries’.

I was also asked to put the slides from the presentation on the group’s website so here they are.
Having A Family Trust

Further information following the AGM from the Carers Trust

For those of you that could not make this years AGM and get  together Jacqui of the Carers Trust  promised some further information that may be of help to all members so I have repeated it below.


I mentioned in my talk the collaboration we have with the Disabled Children’s Partnership to campaign to improve the rights of parents of disabled children. Below is the information we circulated to our local Network Partners about their current campaign. All your members can sign up by clicking on this link to receive updates and participate in the campaign. There is also further information via our website.


Disabled Children’s partnership

Carers Trust is part of the Disabled Children’s Partnership – a group of charities campaigning for disabled children and their carers. We have plans with our partners to campaign for better services for parent carers and disabled children. The DCP are currently building up their support base, so if you, or any of the carers you support, would like to sign up to receive campaign updates directly from the DCP please do.


Other information including the booklet on relationships can be found on our website www.carers.org under the Help and Advice section. We used to have more information under the holidays section here but this has been reduced due to capacity issues to keep it up to date. However, the MS society have more information about their own respite places but also links to other information about accessible places across the UK that may be helpful for your members.


If you need  to find local carers services, both our Network Partners via our website or via their local authority as they can offer valuable information, advice and practical support for them. If they have any problems finding information, they can contact us via email info@carers.org or via our general phone number 0300 772 9600.

A Date for your diary

The date of the WDSSG gathering and AGM is now set for Saturday 8th July in London (NW1 0PT) full details and a draft agenda will be mailed to you following the next committee meeting in February.

There will be plenty of time for you to speak to other parents and carers, and visit nearby attractions like Regents Park, London Zoo, Madame Tussauds, Sherlock Holmes Museum etc. or further afield have a ride on the EYE or go up the Shard (both of which need booking), a trip on the Thames or take in a show.

Social Networks

We would like to invite you join us on one of our social networks sites see links below

Facebook Page:- This is our main page where you can find out all the latest news and events for the Worster-Drought Syndrome Support group https://www.facebook.com/wdssg

Facebook Private Discussion Group:- Please contact Vanessa National.Contact@wdssg.org.uk to be invited to this private group on Facebook, where you can meet other parents with children and adults with WDS Vanessa then will send you a link so you can join this group

Twitter:- Follow us on Twitter for all the latest news and topics https://twitter.com/wdssg

The WDS committee