Further information following the AGM from the Carers Trust

For those of you that could not make this years AGM and get  together Jacqui of the Carers Trust  promised some further information that may be of help to all members so I have repeated it below.

 

I mentioned in my talk the collaboration we have with the Disabled Children’s Partnership to campaign to improve the rights of parents of disabled children. Below is the information we circulated to our local Network Partners about their current campaign. All your members can sign up by clicking on this link to receive updates and participate in the campaign. There is also further information via our website.

 

Disabled Children’s partnership

Carers Trust is part of the Disabled Children’s Partnership – a group of charities campaigning for disabled children and their carers. We have plans with our partners to campaign for better services for parent carers and disabled children. The DCP are currently building up their support base, so if you, or any of the carers you support, would like to sign up to receive campaign updates directly from the DCP please do.

 

Other information including the booklet on relationships can be found on our website www.carers.org under the Help and Advice section. We used to have more information under the holidays section here but this has been reduced due to capacity issues to keep it up to date. However, the MS society have more information about their own respite places but also links to other information about accessible places across the UK that may be helpful for your members.

 

If you need  to find local carers services, both our Network Partners via our website or via their local authority as they can offer valuable information, advice and practical support for them. If they have any problems finding information, they can contact us via email info@carers.org or via our general phone number 0300 772 9600.

A Date for your diary

The date of the WDSSG gathering and AGM is now set for Saturday 8th July in London (NW1 0PT) full details and a draft agenda will be mailed to you following the next committee meeting in February.

There will be plenty of time for you to speak to other parents and carers, and visit nearby attractions like Regents Park, London Zoo, Madame Tussauds, Sherlock Holmes Museum etc. or further afield have a ride on the EYE or go up the Shard (both of which need booking), a trip on the Thames or take in a show.

Adventure Weekend

Dear WDSSG Members

As you may have read in the latest newsletter we are planning to change the format of the “AGM & Family Day” next year (2017) by dividing it into 2 separate events. An AGM & Get together to share experiences in London and secondly an adventure weekend for the young and young at heart like Mark and John.

We have looked at a number of venues and drawn up a short list on which we would love to hear your opinion.

  1. The Calvert Trust Exmoor http://www.calvert-trust.org.uk/exmoor/exmoor

  2. The Bendrigg Trust Cumbria  http://www.bendrigg.org.uk
  3. Hill Top Outdoor Centre Sheringham  http://www.hilltopoutdoorcentre.co.uk/

At present we are planning to go sometime in September when the weather is likely to be good and the water is at its warmest.

Please have a look and let us know what you think, would you come, which would you prefer to go to, do you know of a better venue? Please send your ideas to the committee at committee@wdssg.org.uk .

Unfortunately the group will not be able to sponsor such a meeting so it will have to be self-financed.

Yours

The WDSSG Committee

Christmas Cards

Yes, They Are Back!

card

By popular demand, WDSSG Christmas cards are back and will be available in the next few days. At the bargain price of £3.00 plus P&P, all moneys made go to support the aims of the group.
Post and Packing is £2.60 for the first pack +30p for each additional pack.

 

1 Pack   £3           P&P 2.60              Total £5.60

2 Packs £6           P&P 2.60+30       Total £8.90

3 Packs £9           P&P 2.60+60       Total £12.20

4 Packs £12         P&P 2.60+90       Total £15.50

Etc.

 

To order please Email Nicki the group’s secretary secretary@wdssg.org.uk with your Name, address, how many packs you wish to buy and how you wish to pay. Please copy your order to treasurer@wdssg.org.uk

You can pay by:-

  • Bank Transfer (BACS); this is the preferred method as it free to you and the group. Please set the Payment reference to Cards and the number of Packs you are buying e.g.  Cards 3 for 3 packs.
  • Cheque; please send to John Butt, 212 Ashcroft Road Ipswich Suffolk IP1 6AF
  • PayPal; send to treasurer@wdssg.org.uk but you may get charged and we will.

If you have any issues making the payment with this please feel free to contact John Butt the group’s treasurer on treasurer@wdssg.org.uk

 

50% off Proloquo2Go, Proloquo4Text and Keeble!

50% off to celebrate AAC Awareness Month

Did you know that each October the international AAC Awareness Month is celebrated around the world to commemorate and build awareness about Augmentative and Alternative Communication?

Because this is a very special month for our community we will be offering a 50% discount on our apps Proloquo2Go®, Proloquo4Text™ and Keeble™.Gateway to Language & Learning©, the core word vocabulary available through an in-app purchase in Proloquo2Go, will also be discounted.

Another reason to celebrate!

We’re excited to announce that during the AAC Month we will be releasingProloquo2Go in French! The French version of our symbol-based communication app will be live on the App Store on October 5.

3 days of discounts

The 50% discount on these products will be in effect from Wednesday October 5, World Cerebral Palsy Day, until Friday October 7.

Discount on high volume purchases

The discount will also apply to Apple’s Volume Purchase Program for Education making this a great opportunity to buy more and save more!

Share the news

Do you know people who could benefit from these apps? Spread the word about this limited-time discount!

Questions?

We’re here to help. Contact The support team 24/7 at support@assistiveware.com.

 

Source http://www.assistiveware.com/

What is Speechless?

Speechless shockingly overwrites everything you know about people without speech, and introduces their own stories to stage.

It tells the story of 19-year-old Rebecca. Like Kate, our director, she has no speech due to cerebral palsy. However, like many people in the UK and worldwide, Rebecca has no access to a communication aid or other methods of alternative communication. This means that her story, opinions, and devious teenage thoughts remain unspoken.

This production challenges widespread views about disabled people, through the mediums of dark humour, imaginary friends, and disabled criminals (disabled people can be evil too).

Speechless

If you are in any doubt as to why our voices are so important, check out the video below.

New Website

Hello and Welcome to our new website. We are very excited to be able to bring you a much more streamline and integrated website for you to use.

There is also now a direct member sign up area Join us you can download a membership form or complete one online Membership form. Membership is free and you will get early access to our newsletters and free invitations to our family days.

We have also included an area allowing you to donate directly to us via Charity Checkout. We rely solely on donations to keep us running. If you are thinking of doing a sponsored event please think of us.

We really value your feedback. If you need to get in touch with us then please do here Contact us

The WDS Committee